We are very excited to welcome Dr. Beth Robinson Swartz, pediatrician, recently retired from Henry Ford Health System in Detroit, Mich., to our Medical Advisory Board. She will be working with Hope for HIE to represent the clinical pediatrician experience, supporting families with developmental concerns and disabilities. Her full bio is below.
Hope for HIE announces an organizational shift appointing Betsy Pilon as Executive Director, and David Ford as President of the Board of Directors. Hope for HIE is the premiere global organization dedicated to awareness, education and support for children and families affected by Hypoxic Ischemic Encephalopathy, a type of neonatal and pediatric-acquired brain injury.
Pilon will be the first Executive Director of the organization, previously serving on the Board of Directors and serve as a non-voting member of the board in an ex-officio role. Since 2013, she has worked with several volunteers to grow the support arm from roughly 500 families, worldwide, to now serving over 6,000 families today. She has been instrumental in developing connections with clinicians and researchers who are actively involved in work to decrease the incidence of HIE and improve the quality of life for children and families, serving on the Board of Directors for the Newborn Brain Society, and participating in various task forces and committees as a parent voice in neonatal and pediatric neurology care and communication improvement projects.Read more
Hope for HIE is excited to announce the largest grant in foundation history with Medtronic plc’s involvement as a platinum Partner in Hope.
“This is a historic day for Hope for HIE, to have the partnership from Medtronic allowing us to have the time and resources to move forward our mission to improve the quality of life for children and families affected by HIE - Hypoxic Ischemic Encephalopathy,” stated David Ford, President, Hope for HIE.Read more
We are very excited to welcome Dr. Danielle Barber, a pediatric neurologist, laboratory-based researcher from Children's Hospital of Philadelphia, and HIE mom, to our Medical Advisory Board. She will be working with Hope for HIE to not only represent the HIE parent experience, but bridge her clinical work and laboratory work with mouse models in HIE research to build connections with research. Her full bio is below.Read more
Epilepsy is one of the more common diagnoses to come from HIE, and there are certain types of seizure disorders that HIE children are more prone to developing. According to research studies, HIE makes children five times more vulnerable to developing epilepsy at some point in their life. In addition, HIE is a leading cause of several rare types of epilepsy. We are grateful to participate in many different research and organizational collaboratives to address this population within the HIE community, and work to move forward treatments and therapies to improve the quality of life for families with HIE and epilepsy.Read more